The Emotional Impact of Dementia on Everyone

The link between learning disability and dementia is becoming increasingly understood, with the topic of dementia in particular gaining mounting coverage in the media in recent months.

However, these conversations are only throwing light onto an issue that clearly needs more attention in order for better care and support to be given to people with a learning disability and dementia, or those who are at risk of developing dementia.

It starts with understanding both the emotional impact of the diagnosis and subsequent care, and the challenges being faced; not just by those with a learning disability and dementia, but for the staff caring for them.

From the beginning of the journey of noticing changes in behaviour, to the challenge of receiving a diagnosis and providing the care that follows, it’s a road that not many staff have travelled down before.

One of the key aims of the MacIntyre Dementia Project is to train professionals to provide better care for people with a learning disability living with or at risk of developing dementia. In line with this, we spoke to one of our Registered Managers, Sarah Lancaster, who works at one of our services in Milton Keynes, about her experience of supporting someone with a learning disability and dementia and the emotional impacts she faced with her staff team.

In the six-part series, Sarah takes us through central issues of understanding the emotional impact of a dementia diagnosis on the person, on staff, as well as on family, friends and other relationships and how staff can prepare for the future. The series include:

In the first video – Experience of Supporting People with Learning Disabilities and Dementia – Sarah introduces us to Alison’s story and explains the challenges the staff team went through to get the diagnosis, and some of the experiences they have been through since.

Keep an eye out for the rest of the videos in the series, which will be released in the coming weeks – follow us on Facebook or LinkedIn if you don’t want to miss them.

If you have any questions about the films or the MacIntyre Dementia Project, please email

Telephone 01908 230100 Email