From Seldom Heard to Seen and Heard

You may remember back in June when our Dementia Project team presented at the Dementia Action Alliance (DAA) roundtable for seldom heard groups; one of which being people with a learning disability.

Now, after hearing from other seldom heard groups such as people in prisons and the LGBT+ community, DAA is ready to launch the findings of the campaign – From Seldom Heard to Seen and Heard, on 19 September. DAA members, including MacIntyre, and leaders in the field of health and social care will come together to discuss the issues presented. Speakers include:

  • Nuzhat Ali – Public Health England
  • Shelagh Robinson – Person Living with Dementia
  • Toby Williamson – Consultant
  • Sally Knocker – Dementia Care Matters
  • Dr Karen Dodd – Co-Director of Services for People with Learning Disabilities Surrey and Borders Partnership NHS Foundation Trust

DAA Partnerships Manager, Kelly Kaye said:

“I am looking forward to welcoming delegates to the launch of our campaign. People from seldom heard groups face barriers to accessing dementia diagnosis and good post diagnostic support, which at times fails to meet their needs. Challenges can include a lack of awareness and cultural understanding across health and social care settings. We want our members to come together and pledge to take action on seldom heard groups, not just the groups we focused on at the roundtables, but for all communities who need care and support.”

Delegates will hear the recommendations from the roundtables, a panel discussion involving people living with dementia and carers, and table discussions focussing on:

  • BAME
  • Travellers and Gypsies
  • Irish
  • Learning Disabilities
  • LGBT+
  • Prisons
  • Social Deprivation
  • Young Onset Dementia

Delegates will then be asked to pledge support to the campaign and commit to taking action.

For more information, please contact our Dementia Project team –

Telephone 01908 230100 Email