Personal impact of dementia – Rachel and Alison’s story

Representatives of MacIntyre’s Dementia Project  travelled to London to attend and present at the Dementia – Equity and Rights conference. Our workshop focused on the personal impact of dementia. Rachel shared a video about her friend Alison who has dementia. Both Alison and Rachel are supported by MacIntyre; they have been lifelong friends. As well as the video story, we shared our experiences of the challenges faced by people with a learning disability to not only have a timely diagnosis of dementia, but also to receive the appropriate health care – for example referral to a memory clinic, access to dementia medicine. We shared resources created by MacIntyre’s Dementia Special Interest Group to support staff, families and people with a learning disability to live well with dementia. Those resources are available for download from the menu on the right.

It was an excellent day with lots to hear about and many people to talk to. Thank You to the organisers of the conference for inviting us to share our experiences with others and for a copy of the report that has been produced to highlight the rights of groups of citizens with dementia, who are either left out or misunderstood – disability is one of these characteristics, and the one where we were able to share our practical experiences.

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