You may remember the series of films we shared throughout Dementia Awareness Week in May, in which a Registered Manager at one of our services in Milton Keynes, Sarah Lancaster, talks about her experience of supporting someone with a learning disability and dementia and the emotional impact she faces with her staff team.
We recently filmed the final part of the series, which involves Sarah talking about supporting a person with dementia, their friends, family and staff through and after the final days.
In the film, Sarah reflects on the difficulty of Alison’s final days for everyone involved. From forward planning by staff, advocating for Alison’s environment to be as comfortable and homely as possible, to ensuring everyone involved was kept informed and making sure that Alison’s wishes were respected, Sarah describes how Alison was able to have as good a death as someone could have.
“On reflection, what I learned was to expect the unexpected. These situations will never run according to plan; although we need to have an overarching plan to respect the person’s wishes and dignity, there will always be slight changes because things never run the way we plan, as the world tells us.”