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Our new course for families: WISH

25 April 2023
News

A situation many families have to face is a difficult one: what happens when the parent/carer of someone with a learning disability dies?

Other family members or circles of support will step in, and won’t always have access to all the information they need. This can be especially challenging in the early days, when relatives are themselves grieving the person's loss.

When we think about what happens when family members start supporting their loved one, taking on a role their parents have had years to get their heads around, it becomes overwhelming. There is so much information to discover, where to begin?

This is where our new online course for parents/carers comes in.

WISH: When I Support Him/Her

In this course we will walk you through a structured process to collate all your loved one’s information.

It’s about getting that information out of your head and onto ‘paper’. (This could be an actual notebook or electronic resources, it’s up to you.)

The course will be appropriate whether your son or daughter lives with you, or is supported by an organisation such as MacIntyre.

Course content

This is what we’ll be covering during this programme:

  • Jargon and acronyms
  • All about your loved one
  • Who is involved now?
  • Aspirations
  • Diagnosis/Health/Medication (including history)
  • Allies and barriers
  • Finances, Insurances and Benefits
  • Passwords
  • Support and housing providers
  • The official stuff – Wills, Trust, DoLs, Appointee, Power of Attorney
  • Equipment
  • Staying over, sleep and personal care
  • Meetings
  • Tips to keep the plates spinning, things to be aware of, gaining confidence in meetings, a ‘waiting for’ section, an ‘easy to find’ section, where are the important documents, keep a gift idea list
  • Education or employment and volunteers

Sounds helpful, doesn’t it?

Coming soon

We’re putting the finishing touches to this course right now, and will be sharing more details soon.

Leave your details

Meanwhile, if you’re interested, please leave your contact details here and we will get back to you as soon as we have more news.

Celebrate Families Week with us

15 Sep 2023
News

Families Podcast: Season 3, Episode 4

In the latest podcast episode, Beth Britton and Nicola Payne discuss supporting people living with both dementia and a learning disability.

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31 Aug 2023
News

Families Podcast: Season 3, Episode 3

In the latest podcast episode, we talk to David, Mika and Meg about their involvement in the Victoria & Stuart Project, and what it's about.

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Photo of a mother and her two adult children
25 Aug 2023
News

Janet's Dying to Talk

Janet shares her experience of discussing death and dying with her adult children, who have learning disabilities, around the death of her daughter.

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17 Jul 2023
News

Families Podcast: Season 3, Episode 2

In the latest podcast episode, we talk to Julie and Sue from Books Beyond Words.

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More about how we work with families

Families

MacIntyre was established by the parents of a disabled child in 1966 for all people with a learning disability to live a life that makes sense to them.

Find Out More
9 Jun 2023
News

The Big Plan - Personal Relationships

Here we look at how people with a learning disability and Autistic people often face barriers when it comes to personal relationships and sexuality.

Find Out More
8 Jun 2023
News

The Big Plan – Accessible and Inclusive Meetings

As part of the Big Plan we want to make sure everyone feels included in meetings and that they are always accessible in every way.

Find Out More
7 Jun 2023
News

The Big Plan – how we’re making Co-Production work

We decided to develop our own set of seven co-production standards. We use these standards to evaluate and measure the work that we do.

Find Out More

Resources for families

Alison in words of her sister Sandra

Sandra and her family felt that Alison wasn’t just a member of their family, but of the MacIntyre family too

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Tina and Moira

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Jo and Jess

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Seebeck House
1 Seebeck Place
Knowlhill
Milton Keynes
MK5 8FR
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