The Victoria and Stuart Project is about finding the best ways to help people with learning disabilities plan for the end of their life. The aim of the project is to make sure that people with learning disabilities get the right care and support when they are ill and going to die.
The project is named after two of the people who inspired the research project. Victoria Willson (1970 –2013) and Stuart Hasler (1978 –2020) both had learning disabilities. Each were able, with the support of their families, friends and a team of professionals and services, to live fully until the end of their lives and die in the way they wanted – their own way.
The project is funded by National Institute for Health and Care Research and is delivered in partnership between:
- Kingston University, London
- MacIntyre
- The Mary Stevens Hospice
- Dimensions
- The Open University
- VODG
Who we are looking for
After hosting successful focus groups with a fantastic group of people in Chesterfield, we need MacIntyre Staff and Families of the people we support to join focus groups throughout October.
We want to listen to your experiences, thoughts and opinions about end-of-life care planning. You don’t need any experience of end-of-life care planning to take part, just a passion and desire for better outcomes in end of life care for the people we support!
How to join
If you would like to find out more or would like to express interest in joining the research please email Meg Wilding [javascript protected email address] - or simply use the form below.
