In Dementia Action Week 2023, we’re focusing on people who have a learning disability and develop dementia.
This is always a difficult situation for all concerned, but there are a lot of resources to help.
Living well with Dementia
People who draw on MacIntyre’s support are determined to live well with Dementia:
I can still live well, as well as leading a normal life even though I have Down Syndrome it doesn’t affect who I am. Even with me having dementia, it does not affect who I am
Rosie Joustra, an Expert by Experience
Resources
MacIntyre has developed a whole range of resources related to Dementia. They include a mini-book explaining what Life Story is and how to do Life Story work. The Wellbeing for Life series covers Loss, Change and Grief, and Providing the Best Support among much more.
Do explore these resources, they are there to help.
Podcast
Did you know MacIntyre has a monthly Family Podcast?
Episode 15 with Lee and Andrew Pearce explores the brothers’ experience of caring for their Mum Valerie. It reflects on the importance of building a supportive network, and the commonality of experience around Dementia.
There are many other interesting podcast episodes, some relating to Dementia, some not. Why not explore and subscribe.
Easy Read
And finally, we’ve developed an Easy Read explanation of Dementia seen through the experience of Vince and his life. You can download it below.
Last thoughts
It’s important for me to stay positive, and to focus on the things that I can still do!
A person who draws on MacIntyre's support and is diagnosed with Dementia
