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Preparing to Support

13 May 2024
Blog post

Helping families navigate changes their loved one might face living with dementia

By Nicola Payne: Health and Families Manager 


When you are a parent/carer to a person with a learning disability it can feel tricky at times to keep on track with all the changes your loved one will be experiencing especially if they are also living with dementia.

At MacIntyre, we have such a focus and commitment to supporting people living with a learning disability and a diagnosis of dementia and to live a life that makes sense to them ensuring they are kept at the centre of their care and changing needs Dementia | MacIntyre

We want everyone to feel safe and in control in their everyday lives including families, take a look at our DNA and this will show you in more detail how MacIntyre commits to this in all that we do.

For this year’s Dementia Action Week 2024, MacIntyre wanted to share something that would support the focus of changes that can occur financially.

Part of my role at MacIntyre is to ensure families and circles of support are listened to. From many conversations with families, I often hear that they hold a wealth of knowledge about their loved one and of course, I fully agree with this, and why would I not? I also hear and see the worry families can face as they get older and release that will not be around forever and want to ensure people who are part of their loved ones' world gain the outstanding knowledge they keep, most of the time, in their heads.

So along came the creation of “MacIntyre’s preparing to support guide”. This process will allow families to document everything big or small that a person would need to know to fully support their person in a meaningful way. Click on the link to show you how you can sign up for our Preparing to Support programme 

If you want to listen to find out more you can; you will hear Nicola, Debs, and family member Jo talk about what value this resource can have on our MacIntyre family podcast by clicking here.

“Using this resource alongside your family member with dementia can be a profound experience, offering a guiding light through the challenges of the condition. Beyond its practical benefits, it creates precious opportunities for shared moments of connection, reminiscence, and genuine joy, enriching both your lives in immeasurable ways." Debs Aspland, Parent Carer

The Preparing to Support programme is broken down into weekly chapters and once you sign up you will receive a weekly email with a focus on a different piece of information. Linking our programme to this year’s Dementia Action Week, Week 7 has a financial focus on understanding and managing the financial and legal aspects of your loved one's life. It's essential to have a clear picture of their benefits, banking details, insurance policies, and legal authorisations.

I would love to hear from you, if you have started the programme and how it has helped support you as families/ carers to feel less of a weight of responsibility; offered a space to relax; and, most importantly, spend quality time with your loved ones without the worries, that without, future planning can naturally bring.

If after reading this blog you have any further questions please don’t hesitate to get in touch with me [javascript protected email address]

More about how we support people with Dementia

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Dementia

We have expertise in supporting people with dementia or at risk of developing dementia.

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24 May 2025
Blog post

Creating Supportive Spaces for people living with dementia

MacIntyre’s Health Team share their training approach, making sure every environment where someone lives with – or may be developing – dementia is thoughtful,…

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23 May 2025
News

Launching Dementia Makaton cards

As part of Dementia Action Week 2025, the MacIntyre Health team have created some Makaton signing cards to support conversations around Dementia

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22 May 2025
Blog post

The Magic 10

This Dementia Action Week we want to share a simple concept to enhance support for a person with dementia - a top 10s list

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More about supporting people to be healthy

2 Jul 2025
News

Let’s Talk. Period. – Launching Co-Produced Makaton Cards and Easy Read

We're delighted to launch some more Makaton Signage Cards and Easy Reads for the Let's Talk. Period. project

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21 May 2025
Blog post

Rosie Joustra retires

With Rosie’s contribution having been so pivotal in our dementia work since 2016, Dementia Action Week is the perfect time to say thank you

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15 May 2025
News

Staff stories - mental health

Sharing some experiences of MacIntyre staff who've volunteered their stories for Mental Health Awareness Week

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3 May 2025
Blog post

Motherhood and Mental Health

For Maternal Mental Health Awareness Week 2025, we are sharing the story of one of our staff members

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News

Sui-Ling Show Episode 58

Sui-Ling welcomes Matt Lester from Dimensions, and they talk about co-chairing at Together 4 Change, and advocating for people with learning disabilities.

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